Member of European ME Alliance
EMEA

 

Links

The below links to organisations and personal sites are intended for information purposes only and should not be regarded as endorsement by the Irish ME Trust of the material or views expressed within.

 

 
 

IRELAND

ME-chat Ireland
An informal chat and message board for sufferers of M.E./C.F.S. in Ireland - for mutual support, swapping information or just keeping contact with each other. Moderator Lois Davies.
http://health.groups.yahoo.com/group/mechat-ireland

 

UK

ME Research UK
ME Research UK is a national charity funding biomedical research into Myalgic Encephalomyelitis / Chronic Fatigue Syndrome, whose principal aim is to commission and fund high-quality scientific (biomedical) investigation into the causes of ME. ME Research UK is the IMET principal partner in terms of research projects and conferences.
http://www.meresearch.org.uk
See 2006 Conference Report HERE
See 2007 Conference Report HERE
See 2008 Conference Report HERE

Invest in ME
Invest in ME are an independent UK charity campaigning for bio-medical research into Myalgic Encephalomyelitis (M.E.) as defined by WHO-ICD-10-G93.3., whose aim is to bring together like-minded individuals and groups to campaign for research and funding to establish an understanding of the Aetiology (causes), Pathogenesis (harmful effects) and Epidemiology (the pattern of distribution of a disease through a population) of M.E.
www.investinme.org

Action for ME
Action for M.E. is the UK's leading charity dedicated to improving the lives of people with M.E. who have been campaigning for more research, better treatments and services since 1987 and who provide information and support to people affected by M.E.
http://www.afme.org.uk

ME Association
The ME Association founded in 1976, fulfils its strategic aims by funding and supporting research and providing information and support education and training. This service benefits people with ME (myalgic encephalopathy)/CFS (chronic fatigue syndrome) and PVFS (post viral fatigue syndrome) professionals and all others interested in the illness.
http://www.meassociation.org.uk

The 25% Group
The 25% ME Group was set up to provide a wide range of services to people affected by severe ME many of whom are virtually housebound and/or bedbound.
http://www.25megroup.org

MEActionUK
MEActionUK is an information resource website dealing with the neurological illness - Myalgic Encephalomyelitis. The web site is designed to support, enhance and promote a discussion forum / chat room and is open for anyone who has a personal or professional interest in the many issues surrounding this multi system impairing illness. Topics under discussion include the extensive and growing body of International research as well as the ongoing campaigning effort both in the UK and abroad.
www.meactionuk.org.uk

 

EUROPEAN

NORWAY - Norges ME-forening
The Norwegian M.E. Association was founded in 1987 and has an office in central Oslo. They provide information about ME to lay and health professionals, help and support people with ME and their families and carers and produce a magazine and newsletter.
http://www.me-forening.no

GERMANY – Fatigatio eV
Fatigatio eV is a large independent registered charity which represents more than 1000 members all over Germany. The aim of the self-help organisation is to support patients with ME/CFS by individual counselling, to raise public awareness and to provide information for physicians health care institutions and politicians as well as to promote biomedical research on this illness.
www.fatigatio.de

DENMARK - Dansk ME Forening?
Dansk ME Forening was founded in 2009 and has almost 50 members at present. The purpose of the association is to provide factual information about ME to healthcare professionals, social authorities, to offer factual information and support to patients and their families, and encourage and support serious and sound biomedical research in ME. The association is offering information to members through the association's web site, a Newsletter published four times a year, including information on newest research on ME, and factual medical information about ME for doctors and health authorities. http://www.dmef.dk

 

INTERNATIONAL

Whittemore Peterson Institute
The Whittemore Peterson Institute for Neuro Immune Disease exists to bring discovery, knowledge, and effective treatments to patients with illnesses that are caused by acquired dysregulation of both the immune system and the nervous system, often resulting in life long disease and disability. The Whittemore Peterson Institute’s mission is to facilitate and advance patient care, research the patho-physiology and develop therapeutics, diagnostics and prevention strategies for a spectrum of neuro-immune diseases.
http://www.wpinstitute.org

The CFIDS Association of America
The CFIDS Association of America is the nation's leading charitable organisation dedicated to conquering chronic fatigue and immune dysfunction syndrome (CFIDS) also known as chronic fatigue syndrome (CFS).
http://www.cfids.org

The National CFIDS Foundation
The National CFIDS Foundation was founded in February 1997 to help fund medical research to expedite a treatment and eventual cure, to provide information, education and support to those people who have Chronic Fatigue Immune Dysfunction (CFIDS) - also known as Myalgic Encephalopathy (ME) and Chronic Fatigue Syndrome (CFS) - and related illnesses such as Gulf War Illness.
http://www.ncf-net.org

Co-Cure
Co-Cure" stands for "Cooperate and Communicate for a Cure." and is an information and discussion site focussing on Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME/CFS) & Fibromyalgia.
http://www.co-cure.org

The Nightingale Research Foundation
Dr Byron Hyde founded The Nightingale Research Foundation as a charitable foundation located in Ottawa Canada. The Foundation was incorporated in 1988 to conduct and assist research into the cause and cure of Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (M.E./CFS) and to serve as an educational institution for the Canadian public, physicians, nurses, teachers and their professional societies.
http://www.nightingale.ca

The National ME/FM Action Network
The National ME/FM Action Network is a Canadian, registered, non-profit organization dedicated to advancing the recognition and understanding of Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME/CFS) and Fibromyalgia Syndrome (FMS) through education, advocacy, support, and research.
http://www.mefmaction.net

 

OTHER SITES

Lois Davies
In 1986 Lois received a diploma in Art and Design from North Wales School of Art and in 1989 she gained an Honours Degree in Fine Art from Wolverhampton University and has exhibited widely in England Wales and Ireland. In 1998 she was diagnosed with M.E. and could no longer work as a sculptor. She resumed her art in 2001 using the computer and has twice been the recipient of the 'Arts and Disability Ireland Award'. Lois lives and works in County Wexford and uses the landscape around her home as the subject matter for her work.
http://www.phoenixdigitalstudio.com

Corina Duyn
In 1998 Waterford Dutch-born artist Corina Duyn was diagnosed with ME. The 2004 DVD/Documentary Fit To Fly, produced by Hopewire is a visual diary of her journey throughout this experience. In this documentary the artist talks openly about her growth over the past years and how her journey has informed her art making.
In 2006 Corina went on to publish her first book Hatched – a Creative Journey Through M.E. a book of poetry and artworks, created during the first seven years of illness.
“I have not loved a book this much in years. Beautifully designed, this is something really special and uplifting. Dip into it during bleak moments and take away a thought, image or poem for the rest of the day.” (Theresa Coe, Editor’s from InterAction)
November 2009 saw the arrival of her first Children’s book (for all ages) Cirrus Chronicles – Landing in Ballynelligan. The publication was sponsored by IMET.
www.littlewings.org

Alternative Health Ireland
Alternative Health Ireland lets you find an Irish Alternative Practitioner, course, shop or seminar with ease, and will also keep you informed with related Health Articles.
http://www.alternative-health.ie

Touch Ireland
Touch Ireland is an Irish Charity organisation that focuses on the Vulnerable Children in "Our World".
http://touchireland.thelocalchannel.ie

ME/CFS BLOGS - Treya
Treya the
leprechaun is a 29-year-old woman living in “Sunny little Ireland”. As Treya says – “I’ve been living with ME/CFS now for a few years. I’ve experienced being thrown into the complete unknown, and returning to fairly good health, to complete relapse, which is where I’m at now.....  Read Treya’s Blog HERE

XAND and XMRV
Keep up to date with all the latest XAND and XMRV information.
http://www.xandxmrv.com